Archive for the ‘Invisible Critical Illness Awareness Week’ Category


They call her "Gitzen Girl". More on that in a moment.

Yes, it is that time of year, again. It's Invisible Chronic Illness Awareness Week. It's been a year since the writing about Suffering in the Shadows, and Spoons, and such like. As I mentioned it earlier today, Little Frau said she was ignoring it, but admitted she could not escape it's influence. It's just something you can't ignore. And we should not try.

What a difference a year makes; and not. They say the more things change, the more they stay the same. How ironic.

Shingles are more than just those things that cover your roof. Meth(o) is not just something cooked up in backwoods locals.

"R.A.S." has passed on. "Warm Socks" entered the hospital just this week. And Gitzen Girl is Looking Homeward.

20110915-090819.jpg. She is 29, and suffers from Ankylosing Spondylitis. This week, she's learned the end is near. I've never met her, and I've only read her blog a time or two, but her words and her spirit mean so much to many who share her pain, and Little Frau is but one of the many who are saddened as she is preparing to move beyond, to reunite with the father who gave her the nickname GG.

My objective was not to depress with this post, but I admit that could be one effect. The true hope is to share a level of awareness that I confess even I often lack living under an "RA framed" house with a "shingled roof".

Denial is more than a river in Egypt, or so they say, and it sometimes flows right thru my subconscious plain.

"They" are all around us. Friends. Family. Co-workers. People with chronic illness; Invisible chronic illness. And they look so good. And, truthfully, all they want is someone to understand, or at least to try. No assuming. Just caring.

Lest I leave things on a total down note, I would hope to say it almost as good as Gitzen Girl might. Read her blog and see if you agree. Live life, embrace it, and don't be afraid to laugh, even at the painful or the uncomfortable realities around us, however invisible they may be...








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In this “Switch” moment, I’m reminded of Charlie Sheen, the famed crazed film star who has quite possibly ruined his career, if not his life. Charlie may not choose to “Switch!” for the better, but his employer network certainly has. CBS has made the switch, and they are moving on without him. It kind of makes you wonder if all the crazy acting in “Hot Shots” and other projects was really acting at all.


And it got me to thinking. Sorry to spoil the fun.

Sherry has Rheumatoid Arthritis. We’ve covered it all before. One of the greatest blessings of living in the 21st Century is the advent of new medications. But, can blessings and curses come from the same needle? Quite possibly. Quite possibly.

You see, there are the side effects. Aside from that, the drugs don’t always work. No scientist or doctor has ever cracked the code sufficient to tell you how a unique human being’s body will respond, act, and react. “Hot shots”, indeed.

Things are not working so well, medicinally. Unlike the picture above, Sherry’s no chicken. She is a brave trooper, and is searching for the best right path. A “Switch!” is in order. If you, dear reader are a friend and acquaintance, or not, please be in prayer that this switch will be the right one. A few weeks to go, and we should know soon enough.

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